The Board of Healthwatch Hackney invite you to their public board meeting. Come along and find out about our work.
At this meeting we will have a public discussion on Sickle Cell in Hackney. We are inviting representatives from the Sickle Cell Society, Homerton Sickle Cell & Thalassaemia Service and the patient support group SOLACE to join us for this discussion.
To register for the board meeting click here, the meeting will be by zoom and attendees will be sent the link to the meeting on Wednesday 26th January 2o22.
The local Joint Strategic Needs Assessment in Hackney explains Sickle cell disease is the fastest growing and one of the most common, genetic disorders in England. Sickle cell disease is the name given to a group of hereditary conditions that affect the red blood cells. People with sickle cell disease produce sickle-shaped red blood cells that have a much shorter lifespan than healthy blood cells – 20 days compared to 120 days for a healthy red blood cell.
Sickle cell disease is a serious condition that can seriously affect a person’s life. The average life expectancy for those with sickle cell disease is 40 to 60 years. Sickle cell disease can lead to several other health problems, such as bacterial infections, bone and joint problems (including impaired growth), folate deficiency, gallstones, epilepsy, priapism, chronic lung disease, neurological diseases, kidney problems, vision problems, or a stroke.
People with sickle cell disease who also suffer from depression and anxiety are more likely to suffer from painful episodes. Research has also shown that depressive symptoms in sickle cell disease are associated with poor pain management, multiple blood transfusions, low family income, and history of frequent crises. While the burden of morbidity and mortality at the population level is small, sickle cell disease is a major cause of inequality due to the disproportionate impact on certain ethnic groups. While sickle cell disease is less common than other chronic diseases (such as cardiovascular disease, diabetes and cancer) it is associated with higher rates of hospital utilisation, particularly acute care admissions and longer length of stay. Find out more about the Sickle Cell in Hackney here.
Homerton Hospital run a Sickle cell service & Thalassaemia Service – find out about this service here.
The national voluntary sector agency supporting people with Sickle Cell is the Sickle Cell Society – find out more about the work of the Society and information about Sickle Cell here.
The agenda and papers for this meeting will be published on Wednesday 19th January 2022.